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A goodbye - and welcome to a new BioNews team member

30 November 2009
Appeared in BioNews 536
After almost ten happy years as a BioNews editor, this issue will be my last. I started working for Progress Educational Trust (PET) in February 2000, nearly a year after BioNews was launched by Juliet Tizzard, the first PET director. In my first week, I remember thinking how useful a news digest of developments in the fast-moving areas of genetics and assisted reproduction was - and what a fascinating job it was going to be. But at the same time, I privately wondered whether there would be quite enough 'News' to fill a newsletter every week, and enough controversial topics to merit a regular 'Comment' slot. My doubts as a naïve new recruit were, of course, completely unfounded - the pace of research in these areas of science has been astonishing, and new findings continue to throw up a plethora of ethical, social and legal issues.

As Genetics Editor of BioNews, it has been particularly rewarding to report on the huge progress made over the past ten years in human genetics. I've researched, edited and written stories on the completion of the first draft of the Human Genome Project, the 'HapMap' catalogue of human genetic variation, promising developments in gene therapy, discoveries of genetic influences on common diseases, intriguing epigenetics research, and new DNA sequencing technologies that promise to usher in an era of 'personalised' medicine - to name just a few. But as someone who originally trained as a research scientist, one of the most interesting aspects of writing for BioNews has been gaining an insight into how society deals with the new knowledge that scientists uncover.

Looking back at some of the genetic stories in the news when I first started (the entire BioNews archive is freely available on our recently revamped website,, a couple from issue 45 (14 February 2000) caught my eye:

'Iceland genetics firm to float on stock market' - a story about deCODE genetics, the research firm granted access to the medical records, family trees and genetic information of all of Iceland's 270,000 inhabitants. 'deCODE is going to go like a bomb. It would not surprise me to see its value reach $2 billion or more,' said one industry expert at the time. The company used the country's unique genetic heritage in a hugely successful - if controversial - project to uncover many new genetic variations that influence the risk of common conditions such as diabetes. But last week came the news that deCODE has filed for bankruptcy, prompting media comment that while searches for such gene variants have proved fruitful in terms of shedding new light on disease processes, not enough is yet known for this knowledge to be marketed in the form of useful predictive tests.

Although there is still much to discover about the way in which genes interact with each and non-genetic factors such as diet, lifestyle, and prenatal exposures in the womb, the day may eventually come when for some diseases at least, it will be possible to identify those people most at risk. Whilst such knowledge will undoubtedly lead to new ways of preventing and treating illness, it also raises the spectre of possible 'genetic discrimination', an issue that different countries are tackling in a variety of ways. This process started several years ago - another story from BioNews issue 45 was 'Clinton seeks ban on genetic discrimination', reporting on an order signed by the then US President Bill Clinton, who said that 'my goal is to set an example and pose a challenge for every employer in America because I believe no employer should ever review your genetics records along with your resume'. It took a while, but the US Genetic Information Non-Discrimination Act 2008 (GINA) eventually came into force two weeks ago.

BioNews has followed all these issues and many more, and will continue to do so, in the experienced and extremely capable hands of Reproduction Editor Dr Kirsty Horsey and new Genetics Editor Ailsa Stevens. We also welcome new Science Editor Dr Vivienne Raper to the team, who has a wealth of editorial and science writing experience. With your support, we hope that BioNews will continue to provide weekly news, comment and reviews in these important areas of science for many years to come.

Dr Jess Buxton is Contributing Editor at BioNews and a Trustee at the charity that publishes it, the Progress Educational Trust (PET). She is co-author of The Rough Guide to Genes and Cloning (buy this book from Amazon UK) and Human Fertilisation and Embryology: Reproducing Regulation (buy this book from Amazon UK).

30 November 2009 - by Dr Jay Stone 
Dr Kari Stefansson, founder of biopharmaceutical company deCODE genetics, has claimed that the company will be able to continue normal services despite announcing bankruptcy last week....
23 November 2009 - by Ben Jones 
The US Genetic Information Non-Discrimination Act 2008 (GINA) has come into force introducing new protection against discrimination on the basis of genetic predisposition to disease. The act, signed into law in March of last year by President Bush, outlaws the usage of 'genetic information' to discriminate in the provision of health insurance and prohibits the usage of such information in the making of employment-related decisions such as hiring, firing or promoting....
22 November 2009 - by Dr Jay Stone 
The commercialisation of 'personalised' genetic medicine was delivered a blow last week as the Icelandic biopharmaceutical company deCODE genetics was forced to file for bankruptcy. The company was reported to be restructuring but are now considering an offer from Saga investment for their drug development branch and have been forced to put their other assets up for sale also....
2 June 2008 - by MacKenna Roberts 
Last Wednesday, President Bush signed into law the US's long-awaited Genetic Information Nondiscrimination Act ('GINA'), heralded as the first civil rights legislation of the new millennium. The legislation swept Congress with a combined almost-unanimous 509-1 vote and will prohibit genetic discrimination by employers, insurers and unions...
6 May 2008 - by MacKenna Roberts 
Following the Senate's unanimous approval the previous week, the US House of Representatives, on Thursday, almost-unanimously (414-1) passed the Genetic Information Nondiscrimination Act ('GINA'), providing final Congressional support for legislation that prohibits genetic discrimination by employers, insurers and unions. The bill (HR 493), which is hailed...
28 April 2008 - by MacKenna Roberts 
The US Senate has unanimously (95-0) approved legislation to prohibit genetic discrimination by employers, insurers and unions. Following thirteen years of effort, the Genetic Information Nondiscrimination Act ('GINA') is finally expected early next week, to breeze through approval in the House of Representatives, which supported the...
13 August 2007 - by Antony Blackburn-Starza 
Proposed legislation geared to protect individuals in the US against genetic discrimination has been blocked by Senator Tom Coburn, who is concerned over it's 'lack of precision' and 'unintended consequences' if the bill becomes law. The Genetic Information Non-discrimination Act (GINA) would make it illegal for employers...
29 January 2007 - by MacKenna Roberts 
The proposed Genetic Information Nondiscrimination Act 2007 is poised for fast-track consideration through the US Congress. It was reintroduced into the US House of Representatives earlier this month (HR 493), with its prospects for successful passage into law appearing better than similar past attempts. The Act aims...
14 February 2000 - by BioNews 
US President Bill Clinton has signed an executive order that bars federal agencies from using genetic information to discriminate against employees. He has also given his backing to pending senate bills that aim to prevent private sector employers and insurers from doing the same. Clinton said it was time to...
14 February 2000 - by BioNews 
deCODE genetics, the controversial Icelandic genetics research firm headed by Kari Stefansson, is to be floated on the stock market. It is likely to become one of the largest biotech firms in Europe. 'deCODE is going to go like a bomb. It would not surprise me to see its value...
22 March 1999 - by BioNews 
The on-going debate surrounding the Icelandic gene database project is thoroughly explored in the Sunday Times. Explaining the significant ramifications of a genetically isolated community such as Iceland for research into the causes of genetically inherited diseases, the article covers the setting up of Iceland's first biotechnology firm, Decode Genetics...
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