Talking Genomics with Patients
Progress Educational Trust
Innovate Room, The Studio, 7 Cannon Street, Birmingham B2 5EP
5 March 2019 6pm (tea/coffee), 6.30pm-8pm (panel discussion)
A public event produced by the Progress Educational Trust (PET), in partnership with Health Education England and its Genomics Education Programme, and facilitated by Dr Christine Patch (PET Trustee, also Clinical Lead for Genetic Counselling at Genomics England).
The speaker panel at this event is made up entirely of people who have had, and/or whose family members have had, their whole genome sequenced in order to better understand and treat a condition of known or suspected genetic origin. These speakers include:
Julie Bartlett (former midwife who is now awaiting a heart transplant, campaigning for organ donation and participating in the 100,000 Genomes Project)
Claudia Beard (Parent Representative for Southampton at SWAN UK, and parent of a disabled child who is participating in the 100,000 Genomes Project)
Dr Charles Steward (Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica, and parent of two children with severe neurological disorders who are both participating in the 100,000 Genomes Project)
This event forms part of the Genomics Conversation, a programme of activities which involves the public and stakeholders in discussions about key issues in genomic medicine.
The event also forms part of the annual Genomics Conversation Week of Action, which is being run by Health Education England and the Genomics Education Programme during the week of 4-8 March 2019.
Attendance is free, but advance booking is required. Book your place now by emailing firstname.lastname@example.org
If tweeting about this event, please use the hashtag #GenomicsConversation
Films of previous events in the Genomics Conversation programme can be found on PET's YouTube channel here.