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Talking Genomics with Patients

Progress Educational Trust
Innovate Room, The Studio, 7 Cannon Street, Birmingham B2 5EP
5 March 2019 - 6 March 2019 6pm (tea/coffee), 6.30pm-8pm (panel discussion)

A free-to-attend public event in Birmingham, produced by the Progress Educational Trust (PET) in partnership with Health Education England and its Genomics Education Programme, and facilitated by Dr Christine Patch (PET Trustee/Clinical Lead for Genetic Counselling at Genomics England).

Online booking for this event has now closed, but there are still some places available. If you should like to attend and you have not booked, please arrive at the venue in good time and we will take your details at registration. A map showing how to get to the venue from Birmingham New Street railway station can be found here.

Claudia Beard, Parent Representative for Southampton at SWAN UK and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 Dr Christine Patch, Trustee at the Progress Educational Trust (PET) and facilitator of PET's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 The speaker panel at this event is made up entirely of people who have had, and/or whose family members have had, their whole genome sequenced in order to better understand and treat a condition of known or suspected genetic origin. These speakers include:

  • Claudia Beard (Parent Representative for Southampton at SWAN UK, and parent of a disabled child who is participating in the 100,000 Genomes Project)

  • Sabine Starr (patient with a rare neurological disorder and participant in the 100,000 Genomes Project)

  • Dr Charles Steward (Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica, and parent of two children with severe neurological disorders who are both participating in the 100,000 Genomes Project)

This event forms part of the Genomics Conversation, a programme of activities which involves the public and stakeholders in discussions about key issues in genomic medicine.

Dr Charles Steward, Genomic Scientist and Clinical Domain Lead for Epilepsy at Congenica and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 Sabine Starr, patient with a rare neurological disorder and speaker at the Progress Educational Trust's FREE-to-attend public event 'Talking Genomics with Patients', taking place in Birmingham on Tuesday 5 March 2019 The event also forms part of the annual Genomics Conversation Week of Action, which is being run by Health Education England and the Genomics Education Programme during the week of 4-8 March 2019.

If tweeting about this event, please use the hashtag #GenomicsConversation

Films of previous events in the Genomics Conversation programme can be found on PET's YouTube channel here.