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FILM: What Does Consent Mean for Generation Genome?

23 October 2017

By BioNews

Appeared in BioNews 923

This film documents the Progress Educational Trust/Genomics England event 'What Does Consent Mean for Generation Genome?'.

The event formed part of the Genomics Conversation, a programme of activities led by Genomics England which involves the public and stakeholders in discussions about key issues in genomic medicine.

(If you cannot see the film below, click here to view it.)


Introductions
0:00:00 Sarah Norcross
Director, Progress Educational Trust
0:03:41 Professor Bill Newman
Director, Manchester Centre for Genomic Medicine

Presentations
0:06:19 Professor Anneke Lucassen
Leader of Clinical Ethics and Law research group, University of Southampton
0:18:26 Professor Sue Hill
Chief Scientific Officer, NHS England
0:30:22 Dr Tara Clancy
Consultant Genetic Counsellor, Manchester Centre for Genomic Medicine
0:41:38 Jillian Hastings Ward
Chair of Participant Panel, 100,000 Genomes Project

Audience contributions
1:01:02 Simon Belt
Coordinator, Manchester Salon
1:02:39 Robert Chapman
Psychology researcher, Goldsmiths University of London
1:03:43 Sash Palaniswamy
Bioinformatician
1:04:21 Derek Stewart
Patient advocate
1:15:35 Dian Donnai
Professor of Medical Genetics, University of Manchester
1:17:00 Rheanne Laybourn
Paralegal in Healthcare Litigation, Hempsons
1:17:54 Ronnie Wright
Clinical Scientist, Manchester Centre for Genomic Medicine
1:18:40 Dr Steve Lui
Senior Lecturer, University of Huddersfield
1:29:24 Dr Fiona Ulph
Senior Lecturer, University of Manchester
1:31:04 Dr Julia van Campen
Genetic Technologist, Sheffield Diagnostic Genetics Service
1:31:45 Tina Nesbitt
Parent Representative (North West), SWAN UK
1:32:03 Felix Gille
Research Associate, University of Cambridge

Close
1:43:25 Sarah Norcross
Director, Progress Educational Trust

Documents referred to by panel speakers and audience members in this film include:


Additionally, panel speaker Professor Anneke Lucassen refers to the following two articles in her presentation:


This film was made by the education charity WORLDwrite.

SOURCES & REFERENCES

RELATED ARTICLES FROM THE BIONEWS ARCHIVE

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Published by the Progress Educational Trust

CROSSING FRONTIERS

Public Conference
London
8 December 2017

Speakers include

Professor Azim Surani

Professor Magdalena Zernicka-Goetz

Professor Robin Lovell-Badge

Sally Cheshire

Professor Guido Pennings

Katherine Littler

Professor Allan Pacey

Dr Sue Avery

Professor Richard Anderson

Dr Elizabeth Garner

Dr Andy Greenfield

Dr Anna Smajdor

Dr Henry Malter

Vivienne Parry

Dr Helen O'Neill

Dr César Palacios-González

Philippa Taylor

Fiona Fox

Sarah Norcross

Sandy Starr


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