As the solicitor for L, I take issue with the factual and legal
inaccuracies in the BioNews article headed 'Posthumous Retrieval of
Gametes: A Case of Deja vu?'
It was accepted at court by all
(the Government, the HFEA and ourselves) that the Blood case had not
properly clarified the relevant issues. Whilst the judgment in Blood
was that a similar case should not happen again the relevant
legislation was not amended to ensure that a similar situation would
never arise. The current legislation ( the Human Fertilisation and
Embryology Act 1990) affords discretion to the HFEA to authorise the
use of gametes retrieved without consent in treatment abroad having
regard to the powers conferred under s24(4). It was accepted at court
by the Government and the HFEA that the HFEA did have discretion to
decide whether in L's case export of the gametes should be granted for
treatment abroad. Similarly, it was not argued at all by the
Government or by the HFEA that retrieval of the gametes was illegal or
even 'of questionable legality' although the QC instructed by the HFEA
similarly acted for the HFEA in the Blood case.
The point argued was that storage without consent may be illegal
having regard to the terms of the 1990 Act. That is why in his judgment
Mr Justice Charles made it clear that the clinic currently storing the
gametes should not be prosecuted for continuing to store the gametes
pending a decision of the HFEA Regulation Committee as to whether or
not to authorise the export of the gametes for treatment abroad. The
issue was not retrieval without consent but the storage of gametes
without consent. What Mr Justice Charles said was that if storage
without consent is unlawful then what would be the point of authorising
retrieval of the gametes if they could not be subsequently stored. He
did say that if the HFEA were to exercise its discretion to permit the
storage of gametes for export then that would be a circumstance where
retrieval could be permitted. However in practical terms because a
man's sperm has only a short period after death in which it remains
viable it would be difficult to get the Committee to approve the
storage for export before the gametes were useless.
Sperm retrieval is not covered by the 1990 Act. In fact the proposed
amendments to the 1990 Act would enable retrieval without consent from
persons who lack capacity to consent. Then, if gametes have been
retrieved without consent a Special Directions from the HFEA is then
required if use is to be permitted abroad. For the first time, however,
in his judgment Mr Justice Charles has sought to clarify the issue on
retrieval and now states that it would be unlawful to retrieve. Before
L, that was not the law.
Whilst use of gametes retrieved without consent in the UK is
strictly prohibited, use of such gametes abroad is possible subject to
the grant of a licence from the HFEA in this regard.
L's husband died suddenly and prematurely and the order for
retrieval was made after his death. Some of the comments in the article
have been deeply distressing for my client and are also misleading. The
gametes were retrieved after death and therefore this was not a case of
'a patient being subjected to sperm extraction'. 'Subjected' is of
course a highly emotive word and its use in this context deliberate.
Would the author similarly argue that a patient who has not expressly
not given consent to his organs being removed post death (which the
government now proposes should be the case if organ donation is not
intended) and whose organs are subsequently harvested has been
'subjected' to such harvesting?
In any event due to the circumstances of L's husband's death an
extensive post mortem examination had to be carried out (and, after
considerable soul searching by L, she considered that gamete retrieval
would merely be a small part of the medical procedures to be carried
out after her husband's death).
Mr Justice Charles has now given his judgment as regards the
lawfulness of gamete extraction. It is difficult therefore to see how a
case like this could arise again in the future. Should the HFEA permit
the use of the gametes in treatment of L abroad no precedent will have
been created.
Should L succeed in securing permission from the HFEA to export it
will be a victory for not only for common sense, but primarily and most
importantly for her family and her deceased husband's family (all of
whom continue to support L and are equally of the view that this is
what L's husband would have wanted) and will enable her to hopefully
give birth to a healthy sibling for her child that both she and her
husband wanted and had planned.
The author suggests a one-size-fits-all approach to the HFEA's
discretionary powers - refusal. But this case is a one-off and should
be treated as such. The judge considered and fully accepted the
substantial evidence provided of L's husband's clearly-expressed desire
that L give birth to a sibling for their child. Medical information on
L has been obtained and made available and reputable clinics have
accepted her as a future patient. Her ability to raise a child in a
secure, supportive and loving environment has never been questioned.
Nothing will be gained by destruction of the gametes.








